The last few days have been hell on earth as my head hasn’t stopped playing up. Not only am i woken every morning in the early hours by the beast but the attacks continue through out the whole day also. This makes it very hard to get on with every days tasks and especially doing anything i want that i have planned, i have to put everything on the back burner, so to speak, as dealing with the attacks becomes a full time job. The attacks have been so bad it has left the left side of my face and head constantly swollen and the neck feeling like it is being ripped open. Every time i move my head and neck it cracks and feels like i have something trapped there. The pain becomes so bad it even over powers my injections but i also know if i didn’t have the injections i would be even worst than i feel at the moment.
The trouble with having attacks all the time is it leaves you feeling weak as it seems to take all your strength just dealing with the attack. You constantly feel sick and even eating food seems to aggravate it. The main trigger for the attacks is the cold and with the temperatures dropping over the last week or so i have seen a huge increase in the amount of attacks i get confirming that winter is finally here so the freezing weather won’t be too far behind. I am dreading when it gets really cold as i will end up in agony every day of the week with very little time to recover as i tend to only get very seldom breaks in the attacks. I have taken all the precautions i can take in order to keep the cold off the head but even wrapping up warm sometimes defeats the objective as the heat can also set of attacks now and again. The condition is so unpredictable its very difficult to prepare yourself for what is about to come. I am just hoping i get to see the specialist again before all the freezing weather reaches us.
On a happier note my bowels seems to have calmed down again and i am getting back to normal (if there is such a thing). I don’t seem to be creating as much wind as i was before and i am no longer in constant agony from being bloated and unable to go to the toilet. I am not getting so many pains in the stomach and the back as i was before so fingers crossed what ever was causing it has gone and i am now on the mend. It could also mean that the doctor at the hospital was right and it was definitely the medication side effects that was causing me all the problems. I have started a reduction in my Pregabilin medication from 300mgs down top 200 and then to 150 twice a day. I am still n the 200mgs mark at the moment and can already feel the difference as the body is getting withdrawals from the medication and when i try and sleep at night i am getting cramps in my legs. It just goes to show how much a medication can have a hold on you. Its not until you start to give up the medication you realise just how much your body needs it. I am still getting a little wind build up now and again and have one or two bad days per week with regards to my bowels so i will continue to reduce the medication to see if it makes a big difference and maybe the bowel problem will then go for good.
I can’t believe i have had to wait just over a month for my appointment with my normal doctor as the surgery is so busy it seems like everyone wants the same doctor. I don’t mind the other doctors if it is an emergency but when it comes to important issues i prefer my normal doctor as she is the only one that knows the full extent of my problems and my full medical history. I am hoping that by the time i have to see here at the end of this month i will have good news and will be able to put half of these problems behind me. I have to admit my mood is a little more positive just lately and despite all the doom and gloom and problems i have been getting i have managed to keep my chin up and ride the depression. Sometimes its very hard and difficult as you tend to forget you suffer with depression and end up thinking that the low feelings are normal> Also not having my fishing to fall back on and get me out of the flat has been effecting me the last month so i am going to make the extra effort to getting out this winter and see if i can do a bit of winter predator fishing and catch myself a nice big Pike.
